Tuesday, October 27, 2020
Mitochondrial Health

Diagnosing and Treating Mitochondrial Diseases – Akron Children's Hospital video



While there is still no cure for mitochondrial diseases, there are several steps patients and families can take to address their symptoms and improve the quality of their lives. In this Children’s Channel video podcast, Bruce H. Cohen, MD, director of pediatric neurology at Akron Children’s Hospital, discusses vitamins, medications and other treatment options available to those diagnosed with one of these chronic diseases.

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11 thoughts on “Diagnosing and Treating Mitochondrial Diseases – Akron Children's Hospital video
  1. Seems rare to find doctor that knows of this condition: Very little seems to be known about this illness probably because it only effects minority of people so governments seem to see no point spending much on the research. Here is good book; Your Body's Many Cries for Water: You're Not Sick; You're Thirsty: Don't Treat Thirst
    with Medications1 Nov 2008 by Batmanghelidj, Fr http://www.amazon.co.uk/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks&field-keywords=Your+Bodies+Many+Cries+for+Water+

  2. Hi, I learned about 3 yrs ago after I started having seizures, that mitochondrial myopothy rims in my family. My aunt and grandmother were both diagnosed. I live in a small Alberta, Canada town. The doctors here dont know what is or has been (all my life) causing chronic pain, tremors, cramps, infections, etc. Until I was in my late 20's, I suffered severe leg cramps that would put me in the hospital. Doctors always said it was growing pains. I still have these cramps and the severity is stiĺl horrendous, but not as often anymore. (By the way, I am almost 50) . I have had multipul surgeries for differant types of cancers, and at age 21, I had my first (what looked and presented as) heart attack. By the time I was 42, I had my first ( what looked and presented as) stroke. Both were called a heart attack and stroke but all mris, cts ect show no damage to the origins. At age 44, I started having seizures. Mind you, I only had a total of 4 in a 3 month span but… I have been seeing neurologists, (the first said I wasnt getting enough salt and that the seizures were probably fainting spells) this is when I learned about my aunt and grandmother. I have seen a genealogist who has performed a multitude of tests, put me on 16 differant meds (oh, if my genealogist prescribes q10 or other vitamins, as long as I go to the UofA to fill the prescription, they are free.) Including 4 differant pain killers and 2 muscle relaxants. I still have not got a diagnosis. And my migraines, which started when I was 13, get so bad the can last up to 35 days even going to the hospital for the pain doesnt help. One neuro doctor said that because I can move my eyes ( a chore that causes severe pain) I dont have mitochondrial myopothies. I have severe allergies to alot of things. 9 differant drugs, and plastic, metal, rubber and other things. I cant have blood thinners or ivs. Any thoughts?

  3. My 3 month old daughter died yesterday (Nov 14) of a mitochondrial disease. Just to see her body slowly give out like it did really broke my heart. I wish that we knew what it was, but it’s going to take a while for the lab results.

  4. My son, at present 15 months old, is diagonosed with MELAS. The report also has a column, that says Category is "Uncertain significance". What does this mean?
    He has delayed milestones atpresent and has also developed problem of infantile spasms.
    If someone can give me some guidance on how to treat it, it will be very helpful.

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