Welcome to replay of this live expert session with rheumatologist and author, Dr. Donald Thomas, to discuss “Lupus Fatigue, NAC Supplements and Mitochondria.”
In this session, Dr. Thomas discusses:
– How mitochondria (the powerhouse of the cell) are abnormal in lupus patients
– How this is tied to worse disease activity and fatigue
– What therapies, including over the counter supplements can help!
Have questions about #lupus for Dr. Thomas? Drop them in the comments below, or send us a direct message!
To learn more about Dr. Thomas and his work, please visit: https://www.lupusencyclopedia.com
#Lupus #LupusFatigue
#Mitochondria #NAC
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I was a lupus patient with you in the late 90’s and early 2000’s and then left and have traveled around. Now I live in NC. I have a great internist but have not been able to find a suitable rheumatologist in years and things are kind of a mess.
Wow, this video is hot off the press! Recently diagnosed with SLE in addition to the RA which I've had for 20+ years. I have been hospitalized for over a month with pleural effusion from the SLE, and am being treated with high dose prednisone, which is working but I want to get off it as quickly as possible.
This video helped me envision what I can expect in the future and what things — not only taking meds — are important. I couldn't have imagined NAC would help lupus, but the explanation and data provided were persuasive. I am a lot more hopeful now than I was before I saw this video, and I know I have to take an active role in beating this disease. Thank you so much for this video.
I am curious to know if you have seen any studies on nutritional Iv therapy along with ozone Iv therapy for SLE as it supports mitochondria? Anti-oxidant Iv therapy to help fight all the free radicals talked about? I personally was on the cusp of being treated with Benlysta by my rheumatologist. My liver no longer tolerated methotrexate so I had to stop that. My doctor (Gen practitioner) asked me if I was willing to hold off on benlysta and try nutritional Iv therapy alternating with Iv ozone therapy. I remained on plaquinel. I saw a drastic change in my lupus activity and gained my life back! I am no longer in any steroids either. This has been the case for two years. Most recently, my insurance stopped covering my Iv treatments and all my lupus symptoms came back (low-grade fevers, joint pain on hands and feet, fatigue, rash on face). I am in the midst of trying to find a patient advocate since this Iv nutritional therapy and Iv ozone therapy is not traditional step therapy for SLE. Do you have any insight on this? The mitochondria explanation helped me understand so much that my doctor has explained! I do believe that this treatment has helped me detox all the free-radicals and for this reason I have thrived. I am extremely disappointed that all my old symptoms are back being that I have been able to gain so much of my life back after starting nutritional Iv. These Iv’s consists of high doses of B vitamins, vitamin c, magnesium, glutathione and ALA. The ozone therapy was a little more involved. Do you have any insight at all from case studies that you can refer to me? All I have thus far is my anecdotal account.
This video is informational and I have been wondering about NAC as a Lupus SLE patient. These triggers have sent me to a bedridden state, with severe fatigue, and severe joint pain. I paid out of pocket last year ($200-$270) for an IV of glutathione, vitamin D and C. I noticed a dramatic difference. It was just too expensive to maintain. I hope NAC can help manage these crazy symptoms in conjunction with Hydroxychloroquine.