Presentation by Andrea Parker, Occupational Therapist for the ME/CFS South Australia Inc. Seminar on 7th Sept 2019.
CONTENTS:
0:00 Introduction
2:00 What is ME/CFS and my journey with the illness
5:48 A Systems Theory approach
6:58 The Cell Danger Response Hypothesis
8:00 (A brief detour…a Lego model of ATP production)
10:17 Cell Danger Response continued
12:52 What is the autonomic nervous system and how does it respond to threat?
15:03 The Polyvagal Theory
17:32 Clinical implications of a low functioning Green Zone
21:11 Vagus Nerve Stimulation may activate the Green Zone
23:32 What is Vagus Nerve Stimulation?
28:53 Time to test this hypothesis…on myself!
34:07 The Parasym Data Collection Project
39:30 Implications for research and therapy: What has helped me?
46:46 Implications for research and therapy: ME/CFS and beyond
50:11 Measuring dysfunction and recovery
53:07 Conclusion
54:38 A message of hope
56:02 References
PARASYM FAQ:
– The Parasym is a transcutaneous electrical nerve stimulation (TENS) device that has been setup and approved specifically for vagus nerve stimulation.
– Dosage: Recommended 1 hour per day
– Not recommended for under 18’s and pregnant women (no research in these populations yet)
– Not suitable for people with pacemakers, cochlear implants, and some specific medical conditions.
– Online medical assessment required with Parasym prior to purchase being approved.
– See https://www.parasym.co/ for more information or contact Parasym directly at [email protected]
DISCLAIMER:
– Andrea’s work has been done on a voluntary basis and no payment has been received from Parasym or any other organisation.
– There is no approved treatment for ME/CFS.
– Therapies that Andrea has personally benefited from do not constitute approved treatments for ME/CFS.
– Theories are not facts and require research to be validated.
SUPPORT:
Facebook Group: “A Vagus Adventure – Dawn Wiley” https://www.facebook.com/groups/492041135346672
*Please note this is a Facebook Group offering non-clinical support in the use of vagus nerve stimulation. Please always consult your doctor for medical advice.
RESEARCH UPDATE:
Traianos E, Dibnah B, Lendrem D, et al (2021) AB0051 The effects of non-invasive vagus nerve stimulation on immunological responses and patient reported outcome measures of fatigue in patients with chronic fatigue syndrome, fibromyalgia, and rheumatoid arthritis
Annals of the Rheumatic Diseases 2021;80:1057-1058. https://ard.bmj.com/content/80/Suppl_1/1057.3
Verbanck P, Clarinval AM, Burton F, Nagant C, et al. (2021) Transcutaneous Auricular Vagus Nerve Stimulation (tVNS) can Reverse the Manifestations of the Long-COVID Syndrome: A Pilot Study. Advances in Nerology and Neuroscience Research 2: 100011
https://emrespublisher.com/open-access-pdf/transcutaneous-auricular-vagus-nerve-stimulation-can-reverse-the-manifestations-of-the-long-covid-syndrome-a-pilot-study-100011.pdf
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